This is a memoir which focuses on grief, specifically the grief of a mother whose baby is born with Tay-Sachs, a terminal disease. Before his first birthday, Emily Rapp and her husband learn that their baby will never develop beyond babyhood, will degenerate gradually, and will die around the ag...
Emily Rapp was born with a congenital defect that required, at the age of four, that her left foot be amputated. By the time she was eight she'd had dozens of operations and her entire leg below the knee had been amputated. She had also become the smiling, always perky, indefatigable poster child...
I was taught to believe this, and I did. I loved the ritualistic elements of worship services, especially the sing-and-response psalms: Those perfect echoes of longing were like magical spells being cast in the dark, quiet sanctuary. I liked singing slow, meditative hymns as people silently lined...