I applaud Kerry and Hayley's Okines for sharing their lives through Hayley's Progeria - a disease that causes the body to age 8 times faster than normal causing all the problems of old age to arise prematurely.This book not only educated me on this disease but made me aware of a very brave little...
Mum said they were making a programme about me for television. I thought that all children went on television when they started school, until Mum told me that it was because I had progeria. When I asked what progeria was, she said it meant that I was very special because only one in eight million...